ALS ASSOCIATIONS
ALSA Association
The ALSA mission is to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support.
The ALS Forum
The ALS Forum is a web-based collaborative effort to accelerate and enhance ALS research by providing both veteran ALS researchers, as well as those new to the field, with comprehensive cutting edge coverage of ALS research and drug development news and ALS research resources.
ALS Forums and Chat
The ALS forum is an all-volunteer driven resource provided free of charge to help anyone directly or indirectly affected by ALS and MND.
ALS Therapy Alliance
The ALS Therapy Alliance (ATA) was established in 2002 to bring together a consortium of scientists at multiple institutions to cure ALS.
ALS Therapy Development Institute (ALS TDI)
A nonprofit biotechnology organization dedicated to developing effective treatments for ALS.
ALS Untangled
Scientific effort investigating alternative and off-label ALS treatments, while bringing together patients, clinicians, and scientists via Twitter, a social networking tool.
American Academy of Neurology
The American Academy of Neurology (AAN), established in 1948, is an international professional association of 24,000 neurologists and neuroscience professionals dedicated to promoting the highest quality patient-centered neurologic care.
fALS Connect
fALS Connect is an online registry for people with familial ALS with the stated goal of facilitating research in ALS to develop treatments and ultimately a cure for this disease.
Genetics Policy Institute (GPI) was formed in 2003 with the mission of promoting and defending stem cell research and its application in medicine to develop therapeutics and cures for many otherwise intractable diseases and disorders.
The International Alliance of ALS/MND
The International Alliance of ALS/MND Associations was founded in November 1992 to provide a forum for support and the exchange of information between the worldwide associations. More than 50 national patient support and advocacy groups from over 40 countries worldwide have joined together to form the International Alliance.
Mass General ALS Clinic
Mass General's ALS Multidisciplinary Clinic provides the latest treatments and research opportunities for people with Amyotrophic Lateral Sclerosis.
Motor Neurone Disease Association (MNDA)
The Motor Neurone Disease Association is the only national charity in England, Wales and Northern Ireland that funds and promotes global research into the disease and provides support for people affected by MND.
Muscular Dystrophy Association (MDA)
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
National ALS Registry is Here!
The goals of the registry are to collect information that can be used to estimate the number of new cases of ALS that will be found each year. The information is being used to estimate the number of people who have ALS at a specific point in time, to better understand who gets ALS and what factors affect the disease and also to improve how the disease is managed and how standards of care are developed.
ALS Information at the National Institute of Health (NIH)
Comprehensive overview of ALS provided by MedlinePlus, a service of the U.S. National Library of Medicine. Materials are also available in Spanish.
National Institute of Neurological Disorders and Stroke
The primary NIH organization for research on Amyotrophic Lateral Sclerosis.
New Horizons Un-Limited
A non-profit, 501 (c) 3 organization whose mission is to make information and life experiences accessible to individuals with lifelong disabilities and their families.
PatientsLikeMe
PatientsLikeMe creates new knowledge by charting the real-world course of disease through the shared experiences of patients. While patients interact to help improve their outcomes, the data they provide helps researchers learn how these diseases act in the real-world and accelerate the discovery of new, more effective treatments.
Prize4Life, Inc.
Prize4Life’s mission is to accelerate the discovery of treatments and a cure for ALS by using powerful incentives to attract new people and drive innovation.
Project A.L.S.
Project A.L.S., an organization committed to actively recruiting researchers from many disciplines to work together in four main areas: Basic Research, Genetics, Stem Cells, and Drug Screening.
Stem Cell Action Network
The Stem Cell Action Coalition serves as an engine uniting the pro-cures community; demanding that elected officials in all levels of government, federal and state, treat embryonic stem cell research as a national priority and enact laws to protect funding in order to ensure that cures will come sooner, rather than later.
The Waisman Center
The Waisman Center is dedicated to advancing knowledge about human development, developmental disabilities, and neurodegenerative diseases throughout the life course.
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