Until there's a cure,
there's ALS Worldwide

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ALS Worldwide is a nonprofit organization that provides individualized FREE guidance and support to thousands of people living with Amyotrophic Lateral Sclerosis and their loved ones in the USA and more than 150 countries via email, online resources, and phone. We seek to help people live better and longer with ALS. When you reach for support at ALS Worldwide, you receive FREE personalized attention from those who know from first-hand experience, just what is most needed.

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Our Focus Is You

We provide FREE personalized and confidential support via email, social media and phone to people living with ALS in more than 150 countries.

Community

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Supporting patients in more than 150 countries

Commitment

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of all donations fund care of people with ALS and their loved ones

Care

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Providing free personalized assistance to thousands of families

Contact Us Today For Information and Support
608-698-5700 or info@alsworldwide.org

Personal Experience​

From Our Family to Yours ​

Pathways Through the ALS Storm​

Information gleaned from more than two decades supporting ALS patients and their families.

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More than 35,000 ALS patients and their loved ones worldwide have benefited from the information that is now contained in Pathways Through the ALS Storm. Included in this publication are general information about ALS, potential medications for symptom relief, emotional support, personal care, newly developed devices, exercise, diet, supplements, vitamins, caregiver advice, positivism, and hope. Patient stories of their perseverance and strength in the face of overwhelming odds are included throughout. Their courage is a beacon of hope to all. Pathways Through the ALS Storm is a compendium of what we have gleaned through twenty years of experience, research, and support of ALS individuals and their families. Available in both print and epub format on Lulu.com.

 

Shatterproof​

A gripping memoir of Barbara Byer’s heartbreaking journey of love, acceptance and peace.

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Shatterproof is a memoir about my experiences as the mother of a young man afflicted with ALS. I began journaling shortly after Ben was diagnosed, some of which I included for its honesty and in the moment experience. Much is reflective, looking back on painful, humorous, heartbreaking experiences which began in 2002 and ended in part in 2008. Truthfully, grief never ends. But it does find a place in our hearts and minds where joy mingles with sadness and life continues to unfold in a different rhythm. When I’m asked how many children you have, I always respond, “Five, but we lost one son to ALS.” I suppose it’s my way of keeping him alive, with me, as part of our family. Available through the bookstore on Lulu.com in both print and epub, my memoir is a truthful journey of love, acceptance, and peace.

Indestructible Film​

A series of video diaries grew into a three-year journey as Ben Byer searched for answers.

 Joined by his childhood friend Roko Belic (Academy Award™ nominee, Genghis Blues) as his cameraman, Ben takes his audience on a daring first-person ride through the world of ALS. As he meets with medical experts and other ALS sufferers, Ben reveals a hidden world in which people struggle to stand, to speak, and to remain alive as they await the breakthrough that might save them. Winner of the Jury Prize for Best Feature Documentary at the 2007 Cinequest Film Festival, Indestructible has received praise for its riveting storytelling, beautiful cinematography, honesty, humor and compassion. An artistic triumph, Indestructible delivers a universal message about the bonds of family, the necessity of hope and the tragic joy of being alive.

Stories from ALS Families Throughout the World

Unwavering Optimism - Supporting Patients Worldwide

“Those who tell the stories rule the world.” This Hopi American Indian proverb reminds us that there is power in telling the world how heroism lives in the day to day lives of those in the ALS community. The dreams realized, the losses experienced, the love that fills lives. Sharing stories is the glue that binds us together. Connecting with others reminds us that we are not alone. Telling your story will heal you and it will heal someone else.

Share Your Story Today and Include a Photo Here: